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Appendix B—Outcomes Monitoring Systems of Some State Agencies
Treatment outcomes monitoring systems developed by State
agencies vary considerably in their content and methods as well as in their
stage of development. Six State systems are profiled in this appendix to illustrate
the variety as well as the commonalities of existing State systems: California,
Colorado, Iowa, Minnesota, Tennessee, and Washington.
California and Washington are included among the examples
even though they do not conduct outcomes monitoring as described in this Treatment
Improvement Protocol (TIP). These two States, like the other four discussed,
have developed and implemented sophisticated systems to collect data on patients
at admission and discharge. Like the others, they have incorporated the Federal
Client Data Set in their admission forms and modified and enhanced this minimum
data set in a variety of ways to meet local needs. Like the others, they also
collect data on patients from a variety of levels of care and treatment modalities
in their service delivery systems.
California, with the largest treatment service delivery
system among the States profiled, recently completed an expensive, methodologically
rigorous followup study of a sample of patients to document treatment effectiveness
and the cost benefits of treatment. This study involved in-person interviews
that typically lasted over an hour, a method too expensive for broad-scale outcomes
monitoring. While such a study is not a substitute for routine outcomes monitoring,
it does dramatically illustrate the utility of a design that measures the cost
offsets of treatment.
Washington has not instituted postdischarge followup of
its patients, but this is the next stage in its developmental process. This
State system is included as an example of a State with a phased-in development
and implementation plan. Also, Washington includes the most comprehensive assessment
information on all patients, as well as a tracking mechanism for patients eligible
for publicly funded treatment. Washington also has the most sophisticated system
in terms of electronic data transfer and automated summary reports. The system
is designed so that each program maintains its own individual database as well
as forwards data for central processing.
Among the States, only Minnesota collects data on virtually
all private-pay as well as public-pay treatment patients. Minnesota's provider
reimbursement system for public-pay clients is unique, resulting in a competitive
marketplace where all programs in the State compete for public-pay clients.
Since all but a few programs serve public-pay clients, all are subject to data
collection requirements. In Iowa, private programs can report voluntarily, but
few choose to do so.
Of the four States described with systematic outcomes
monitoring in place, Colorado, Minnesota, and Tennessee rely primarily on telephone
interviews for patient followup. Iowa uses telephone and in-person interviews
during clinic visits by the patient. Colorado and Iowa rely on treatment program
staff to conduct the followup interviews, whereas Minnesota and Tennessee contract
with researchers to conduct the interviews. Minnesota used treatment staff for
several years but changed in 1993 because of the low contact rate and the skewed
followup sample (composed largely of patients with better prognoses). Minnesota's
contracted services include only the interviews; State agency staff conduct
the data analyses and write the reports. Tennessee's contracted services include
both data analyses and reports.
Postdischarge followup intervals also vary from State
to State. Iowa and Minnesota conduct a single followup at 6 months postdischarge.
Tennessee conducts followups at 6 and 12 months and reports only on patients
for whom both contacts were successful. In Colorado, the contact intervals range
from approximately 12 to 18 months. The California outcome study also involved
variable intervals ranging up to 24 months, with
an average postdischarge interval of about 15 months.
Among the six States described here, only California has
offered patients an incentive ($15) to participate in the followup interview.
The interview was much longer (75 minutes) than those in other States, (about
15 to 20 minutes), and it was conducted in person rather than over the telephone.
California, Colorado, Minnesota, and Tennessee all used
or are using a sample of the total patient population for followup. California,
Colorado, and Tennessee used a retrospective random sampling design, identifying
the sample from discharge patients. Minnesota uses a prospective convenience
sample. After all treatment program staff are trained, staff seek informed consent
from 30 consecutive patients (or some predetermined pattern of alternate admissions).
Consenting patients are asked to participate in additional comprehensive in-treatment
data collection, as well as the followup interview. Iowa attempts to follow
all patients who successfully complete treatment.
Because of ongoing refinements to State systems, interested
readers are encouraged to contact State agencies directly to request sets of
questionnaires, forms completion manuals and other training materials, and available
reports. The summary provided here also does not address followup consent rates
and contact rates, both important to consider along with other methodological
issues in weighing the potential effects of sample bias. Because these issues
are too complex for the brief overview provided here, no attempt has been made
to compare State systems in this regard. Outcomes monitoring system planners
are urged to discuss design issues with State personnel with previous experience
to determine why they chose the design they have adopted, what previous experiences
influenced their decisions, and whether they have plans to make refinements
in the future.
California Department of Alcohol and Drug Programs
Address:
1700 K Street
Sacramento, CA 95814
Contacts: Dennis Johnson
Dorothy Torres
Research and Policy Analysis Branch
Telephone (916) 322-2285
Fax (916) 323-5873
Treatment Data
California Alcohol and Drug Data Systems (CADDS):
Target programs. All treatment providers that receive any public funding
for treatment services or that are required to report as a condition of State
licensing; approximately 800 programs report on CADDS.
Target population. All admissions to CADDS reporting programs; approximately
143,000 annually.
Levels of care. Three types of residential treatment (short-term, long-term,
and residential) and four types of outpatient (methadone maintenance, nonmethadone,
detoxification, and intensive).
Forms. Participant Record Admission Copy, which incorporates the Federal
Client Data Set.
Participant Record Discharge Copy, which includes Client Data Set items at discharge as well as level of care, modality, and length of stay.
Data entry. Keyboard.
Followup Data
California Drug and Alcohol Treatment Assessment (CALDATA):
Followup method. Study
design and interviews done under contract with the National Opinion Research
Center (NORC) at the University of Chicago and Lewin-VHI, Inc., Fairfax, Virginia,
between September 1992 and March 1994; in-person interviews with patient, lasting
an average of 75 minutes, conducted by trained researchers from NORC. Average
postdischarge interval was 15 months; intervals ranged up to 24 months.
Target programs. Sample
of 97 providers from 16 counties selected, based on principles of geographically
balanced, size-weighted random selection.
Target population. Random
selection of patients discharged (or in methadone maintenance) between October
1, 1991, and September 30, 1992. A total of 1,859 interviews were completed
from a base sample of 3,055.
Data entry. Keyboard.
Estimated costs. $2
million for followup study.
Future Plans
Conduct a 4- to 5-year followup on the patients interviewed for the 1994 report.
Report
Evaluating Recovery Services: The California Drug and Alcohol Treatment Assessment (CALDATA) General Report. Submitted to the State of California Department of Alcohol and Drug Programs by the National Opinion Research Center and Lewin-VHI, April 1994. Authored by Dean R. Gerstein, Robert A. Johnson, Henrick J. Harwood, Douglas Fountain, Natalie Suter, and Kathryn Malloy. A copy of the report can be obtained by contacting the California Department of Alcohol and Drug Programs Resource Center at (916) 327-3728 or (800) 879-2772.
Colorado Department of Human Services Alcohol and Drug Abuse Division (ADAD)
Address 4300 Cherry Creek Drive South
Denver, CO 80222-1530
Contact Linda Harrison
Data Analysis and Evaluation Section
Telephone (303) 692-2940
Fax (303) 753-9775
Treatment Data
Colorado Drug/Alcohol Coordinated Data System (DACODS):
Target programs. All
treatment providers that receive any public funding for treatment services,
as well as those under special reporting requirements; approximately 40 programs.
Target population. All
admissions to reporting programs; approximately 63,000 annually.
Levels of care. Free-standing
residential detoxification, psychiatric residential, therapeutic community,
transitional residential, intensive residential, and outpatient.
Forms. DACODS Answer
Sheet includes Admission-only items, items coded at Admission and Discharge,
and Discharge- only items; incorporates Federal Client Data Set.
Data entry. Keyboard;
currently developing automated data submission whereby clinics would submit
data on diskette.
Followup Data
ADAD Followup Study:
Followup method. Telephone
interviews with patient or third party conducted by treatment provider staff
approximately 12 to 18 months postdischarge.
Target programs. All
programs except detoxification.
Target population. Random
selection from discharges between June and December 1992 stratified by treatment
history; redesign of study conducted about 2 years earlier.
Data entry. Keyboard.
Estimated costs. Personnel
and other administrative costs.
Future Plans
Analyze and report on data collected at most recent followup.
Publications
Treatment Client Profiles and Followup Results, February 1992; Current Findings on Treatment Effectiveness, February 1992.
Iowa Department of Public Health Division of Substance Abuse and Health Promotion
Address Lucas State Office Building
Des Moines, IA 50319
Contacts Janet Zwick, Director
Telephone (515) 281-4417
Fax (515) 281-4958
Linda Holt
Telephone (515) 281-4643
Fax (515) 281-4535
Treatment Data
Substance Abuse Reporting System (SARS):
Target programs. All
treatment providers that receive any public funding for treatment services,
and private programs that voluntarily report. Approximately 46 programs report
on SARS.
Target population. All
admissions to reporting programs; approximately 25,000 annually.
Levels of care. Detoxification
(medically managed, medically monitored, and outpatient), acute inpatient, medically
monitored residential treatment, primary residential treatment, extended residential
treatment, day treatment, halfway house, continuing care, extended outpatient,
intensive outpatient.
Forms. Admission/Evaluation
form incorporates Federal Client Data Set.
Services form records a variety of services and the number of days, sessions, or length of time involved in these services.
Discharge/Followup form includes relevant Client Data Set items, discharge status, and discharge date, as well as outcome measures and ratings of services received.
Data entry. More than
half the programs enter data online and submit by modem or diskette; the others
send hard copies for keyboard entry.
Followup Data
Uses SARS Discharge/Followup form:
Followup method. Telephone
interviews by treatment program staff or clinic visits 6 months postdischarge;
followup conducted with patient or a significant other.
Target programs. All
reporting programs.
Data entry. Same as
above.
Estimated costs. Personnel
and other administrative costs.
Minnesota Department of Human Services
Chemical Dependency Division
Address 444 Lafeyette Road
St. Paul, MN 55155-3823
Contact Patricia Ann Harrison, Ph.D.
Administrative Planning Director
Telephone (612) 296-8574
Fax (612) 297-1862
Treatment Data
Drug and Alcohol Abuse Normative Evaluation System (DAANES):
Target programs. All
treatment providers that receive any public funding for treatment services (356
of 365 programs), including almost all private programs; approximately 35 detoxification
facilities also report voluntarily on a separate DAANES system.
Target population. All
private- and public-pay admissions; approximately 32,000 treatment admissions
and 36,000 detoxification admissions annually.
Levels of care. Primary
inpatient, primary outpatient, residential extended care, and halfway house;
detoxification facilities report on a separate system.
Forms. Intake form incorporates
portion of Federal Client Data Set.
History form incorporates an expanded version of the alcohol and other drug (AOD) use items from the Client Data Set and an arrest summary.
Discharge form includes discharge status, referrals, payment source and charges, inpatient days, and outpatient treatment hours.
Data entry. Optical
scanner.
Followup Data
Treatment Accountability Plan (TAP):
Followup method. Telephone
interview with patient 6 months after discharge conducted by researchers at
New Standards, Inc., St. Paul (formerly CATOR).
Target programs. All
reporting treatment programs (not detoxification facilities). Staff from approximately
15 programs are trained to begin TAP data collection each month for 24 months.
Target population. 30
consecutive (or alternate) admissions from each program once during a 3-year
cycle. In addition to DAANES, TAP sample patients complete a modified Minnesota
Addiction Severity Index (ASI) and weekly Treatment Services Review (TSR).
Data entry. Online.
Estimated costs. $20
per patient interview attempted or completed plus SSA personnel and administrative
costs.
Future Plans
Complete followup interviews in 1995. Analyze data and issue final report on findings in 1996. Refine focus, revise instruments, and repeat the 3-year cycle. Develop software for onsite data entry of DAANES, ASI, and TSR and electronic data transfer by 1997.
Publications
Chemical Dependency Treatment Accountability Plan by Patricia Harrison. Report to the Minnesota Legislature, January 1992. The Minnesota Treatment Accountability Plan as a Treatment System Planning Tool by Patricia Harrison, submitted for publication
Tennessee Department of Health
Bureau of Alcohol and Drug Abuse Services
Address Tennessee Tower
312 8th Avenue North
12th Floor
Nashville, TN 37247-4401
Contacts Rick Bradley
Director of Contract Compliance
Telephone (615) 741-8515
Fax (615) 741-2491
Charles Williams, Ph.D.
University of Memphis Department of Anthropology
Memphis, TN 38152
Telephone (901) 678-2080
Fax (901) 678-2069
Treatment Data
Alcohol and Drug Services Admission form:
Target programs. All
treatment providers that receive any public funding for treatment services;
approximately 55 agencies.
Target population. All
admissions to publicly funded programs; approximately 12,000 annually.
Levels of care. Residential
and outpatient.
Forms. Admission form
incorporates Federal Client Data Set.
Discharge form includes a record of services and number of visits, discharge status and referrals, rating of adaptive functioning at last encounter, and Client Data Set drug use items at termination.
Data entry. Keyboard
for half the agencies; the others submit data on diskette; converting to diskette
data submission for all programs in 1995.
Followup Data
Tennessee Outcomes for Alcohol and Drug Services (TOADS):
Followup method. Telephone
interviews with patients and collaterals conducted by research assistants under
supervision of project director at University of Memphis; interviews conducted
6 and 12 months postdischarge (report sample limited to patients who complete
both interviews).
Target programs. 25
facilities in 1991/1992; expanded to all programs willing to participate.
Target population. Random
selection of patients who complete treatment; sample totaled 1,846 in fiscal
years 1991 and 1992. Future target of 15 percent of all admissions.
Incentives. None.
Data entry. Optical
scanner.
Estimated costs. Approximately
$225,000 annually for followup interviews and reports.
Future Plans
Analyze and report on data collected since September of 1993.
Publications
A Report of Outcomes: Tennessee Outcomes for Alcohol and Drug Services (TOADS). Prepared for the Bureau of Alcohol and Drug Abuse Services, Tennessee Department of Health, by Charles Williams and Nancy Hepler, October 1994
Washington State Department of Social and Health Services, Division of Alcohol and Substance Abuse (DASA)
Address P.O. Box 45330
Olympia, WA 98504-5330
Contacts Kenneth Stark, Director
Telephone (206) 438-8200
Fax (206) 438-8078
Fritz Wrede
Telephone (206) 438-8224
Fax (206) 438-8078
Treatment Data
Treatment and Assessment Report Generation Tool (TARGET):
Target programs. All
treatment providers that receive any public funding for treatment services;
approximately 194 programs.
Target population.
All admissions to publicly funded programs; approximately 13,000 detoxification
admissions and 32,000 treatment admissions annually.
Levels of care. Detoxification,
intensive inpatient, intensive outpatient, outpatient methadone, long-term residential,
extended care, recovery house.
Forms. Assessment/Admission
Setup form includes patient identification and demographics, provider identification,
and referral information for patients eligible for publicly funded treatment.
Assessment/Admission and Discharge form includes Federal Client Data Set items as well as assessment information related to physical health, psychological condition, illegal activity, and substance use history.
Discharge form includes discharge status, referrals.
Data entry. Online;
each participating agency maintains its own local database as well as forwarding
data to central database. System features a variety of automated reports.
Followup Data
Tentative plans include telephone followup conducted by an independent research agency under contract with DASA; followup sample would be drawn from TARGET database and findings integrated with TARGET data. Plans also include a series of special studies on special populations and areas of particular interest.
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